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Prostatepedia features informal conversations with doctors, patients, and activists about prostate cancer. Each month they tackle a different topic facing prostate cancer patients today—from how imaging has impacted treatment to dealing with erectile dysfunction after radiation or surgery to the evolving field of immunotherapy.

Prostatepedia Magazine (quarterly) and the weekly Prostatepedia Digests became part of NASPCC starting with the August 2020 issue.

Use this link to learn more about Prostatepedia...

Merel NissenbergComments from Ms. Merel Nissenberg, President of the National Alliance of State Prostate Cancer Coalitions have appeared recently in several issues of Prostatepedia. 

Rivanna Health Publication's Prostatepedia features informal conversations with doctors, patients, and activists about prostate cancer each month tackling a different topic facing prostate cancer patients today.

Here are links to these recent articles:

How to Make Well-Informed Decisions When Dealing With Prostate Cancer

This recent article from Future of Personal Health, Ms. Nissenberg discusses resources from NASPCC and CPCC that help men 40 and older ask their doctor questions that will enable them to make informed decisions about whether to get tested for prostate cancer.

Use this link to read the entire article "How to Make Well-Informed Decisions When Dealing With Prostate Cancer"How to Make Well-Informed Decisions When Dealing With Prostate Cancer"

Helping Patients Navigate the World of Clinical Trials

In this May 2019 article, Ms. Nissenberg, along with Mr. Tom Kirk, who is the Vice-President of the California Prostate Cancer Coalition, discuss "how, why and when patients should consider a clinical trial.

Use this link to read the entire article "Helping Patients Navigate the World of Clinical Trials" - PDF

Merel Nissenberg: Focal Therapy on Prostate

In this April 2019 article, Ms. Nissenberg discusses the use of Focal Therapy as a treatment for Prostate Cancer. Interest in focal therapy is fueled by the promise of cancer control with fewer side effects than are seen after radiation or radical prostatectomy.

Use this link to read the entire article Focal Therapy on Prostate - PDF

Merel Nissenberg On Non-Metastatic Castrate-Resistant Prostate Cancer

In thie article, Ms. Nissenberg discussed non-metastatic, castrate-resistant prostate cancer (nmCRPC), a clinical state in which a patient on androgen-deprivation therapy (ADT) has a rising PSA but there are no radiological findings of metastases on CT or bone scan.

Use this link to read the entire article On Non-Metastatic Castrate-Resistant Prostate Cancer

Ms. Merel Nissenberg: Hypofractionated Radiotherapy

Ms. Merel Nissenberg is the President of the National Alliance of State Prostate Cancer Coalitions, a nation-wide organization comprised of state prostate cancer coalitions dedicated to saving men’s lives and enhancing the quality of life of prostate cancer patients and their families through awareness, education, and the development of a public policy network. In this article she offers two views of hypofractionated radiotherapy for prostate cancer.

Use this link to read the entire article Hypnofractionated Radiotherapy

Genetics Testing + Counseling

In the article, Ms. Nissenberg notes the National Alliance of State Prostate Cancer Coalitions strongly endorses the use of genetic testing and genetic counseling for prostate cancer, and urges clinicians to read, consider, and follow the scientifically sound suggestions of the 2017 Philadelphia Prostate Cancer Consensus Statement on the Role of Inherited Prostate Cancer Risk.

Use this link to read the entire article Genetics Testing + Counseling

Proceeding from the 13th Annual Meeting of NASPCC 

Use this link to read State Prostate Cancer Advocacy Groups Meet from January 2018

 

 rev: 06/28/2019

 

Attachments:
Download this file (Article-ProstatepediaApril2019.pdf)Focal Therapy on Prostate[ ]1499 kB
Download this file (Prostatepedia_May2019NASPCC.pdf)May 2019 Prostatepedia article[ ]143 kB