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Prostatepedia features informal conversations with doctors, patients, and activists about prostate cancer. Each month they tackle a different topic facing prostate cancer patients today—from how imaging has impacted treatment to dealing with erectile dysfunction after radiation or surgery to the evolving field of immunotherapy.

Prostatepedia Magazine (quarterly) and the weekly Prostatepedia Digests became part of NASPCC starting with the August 2020 issue.

Use this link to learn more about Prostatepedia...

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The National Alliance of State Prostate Cancer Coalitions (NASPCC) is exceedingly grateful for our excellent and committed corporate sponsors. Corporate sponsors are critical to the work of NASPCC. As a result of the generosity of the following sponsors, we have been able to initiate and conduct robust programs in support of the development of new coalitions and the evolution of existing coalitions nationwide. And, we have been able to host annual meetings every year since the development of our organization ten years ago, to which, as a result of our sponsor’s support, we bring coalition and state representatives from across the country and provide them with information and networking opportunities that enhance their ability to represent the prostate cancer issue back home in their states.

2019 Annual Meeting Sponsors (15th Annual)

  • Dendreon
  • Bayer
  • Astellas
  • Pfizer
  • Genomic Health
  • Progenics Pharmaceuticals
  • Boston Scientific
  • Sanofi Genzyme
  • Amgen
  • Merck
  • Janssen Oncology
  • Accuray
  • BIO - Biotechnology Innovation Organization
  • Avenda Health
  • Genetech
  • Decipher Biosciences 

2018 Annual Meeting Sponsors

  • Dendreon.
  • Astellas.
  • Pfizer.
  • Genomic Health.
  • Progenics Pharmaceuticals.
  • Sanofi Genzyme.
  • Amgen.
  • BIO - Biotechnology Innovation Organization.
  • Avenda Health.
  • Myriad
  • Augmenix
  • Cyberknife Accuray
  • Epic Sciences

2017 Annual Meeting Sponsors

  • Astellas
  • Pfizer
  • Dendreon
  • Myriad Genetics
  • Genomic Health
  • MDx Health
  • Augmenix
  • Progenics Pharmaceuticals
  • Genome Dx
  • Strata Oncology
  • Sanofi Genzyme
  • Accuray (Cyberknife)
  • TerSera Therapeutics

2016 Annual Meeting Sponsors

  • Cyberknife Accuray
  • Astellas / Medivation
  • Bayer Health Care
  • Dendreon
  • Genome Dx Bioscience/Decipher
  • Genomic Health
  • Medivation
  • Oncotype DX
  • PhRMA
  • Sanofi Oncology
  • Tokai Pharmaceuticals

2015 Annual Meeting Sponsors

  • Astellas / Medivation
  • Dendreon
  • Myriad Genetics
  • PhRMA
  • Sanofi

2014 Annual Meeting Sponsors

  • Bayer HealthCare
  • Genomic Health

Previous Years Annual Meeting Sponsors

  • Janssen
  • Genome Dx
  • Caro's Life Sciences
  • Ventana/Roche
  • Gen-Probe (now Hologic)
  • Beckman-Colter (now Daneher)

 

 

 rev: 12/28/2019

The following are the states with coalitions that are involved with the National Alliance of State Prostate Cancer Coalitions. Use this link if you are interested in starting your own State Coalition.

Use the links below to find contact information about each state coalition:

Alabama | Alaska | Arizona | Arkansas | California | Colorado | Connecticut | Delaware | Dist. Of Columbia | Florida | Georgia | Hawaii | Indiana | Kansas | Kentucky | Louisiana | Maine | Maryland | Massachusetts | Michigan | Minnesota | Missouri | Nebraska | Nevada | New Hampshire | New Jersey | New Mexico | New York | North Carolina | Ohio | Oregon | Pennsylvania | Rhode Island | South Carolina | Tennessee | Texas | Utah | Virginia | Washington | West Virginia | Wisconsin | Wyoming


 

  • Alabama

    Cheryl Cropp
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

     

  • Alaska

    Alaska Prostate Cancer Coalition

    Julia Thorsness
    Phone: 907-269-8092
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

     

  • Arizona

    Arizona Prostate Cancer Coalition

    Bruce Williams, President
    Phone: 602-524-0286
    E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it. 

     

  • Arkansas

    Arkansas Prostate Cancer Foundation

    Chris Collier
    Phone: 501-379-8027
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

     

  • California

    California Prostate Cancer Coalition

    Merel Grey Nissenberg, Esq., President
    Phone: 310-525-3570 or 619-518-6465
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

     

  • Colorado

    Prostate Conditions Education Council

    Wendy Poage, MHA, President
    Phone: 303-316-4685 or 866-4PROST8
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

     

  • Connecticut

    Connecticut Prostate Cancer Education Forum

    Robert Shekhdar, Peer Coordinator
    e-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

     

  • Delaware

    Delaware Prostate Cancer Coalition

    David Sauls
    Phone: 302-270-6229
    E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

     

  • Dist. Of Columbia

    Assembly of Petworth, Washington, DC.

    Ray Bridgewater, President & CEO
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

     

  • Florida

    Jim West Foundation

    James West, Founder
    Phone: 727-656-4080
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

     

  • Georgia

    Georgia Prostate Cancer Coalition

    Dwight Thomas, President
    Phone: 404-925-5139
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it. 

     

  • Hawaii

    Hawaii Prostate Cancer Coalition

    Paul Mizue, President
    Phone: 808-222-0425
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

     

  • Illinois

    Under Development

    Contact:
    Robert Jelks
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it.
     

  • Indiana

    Under Development

     

  • Kansas

    Kansas Prostate Cancer Coalition

    Ullyses Wright, President
    Phone: 913-764-0781
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

     

  • Kentucky

    Kentucky Prostate Cancer Coalition

    Steve Henry, President
    Phone: 502-384-5346
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

     

  • Louisiana

    Russell and Jean Benjamin-Vappie
    E-mail: 

 

  • Maine

    Maine Coalition to Fight Prostate Cancer

    Brian Clough, President
    mcfpc.org
    Phone: toll free (855) 552-7200
    E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

     

  • Maryland

    Maryland Prostate Cancer Coalition

    Edward C. Jones, Ph.D., President
    Phone: 310-203-1522
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

     

  • Massachusetts

    Massachusetts Prostate Cancer Coalition

    Alan Snyder, Chair
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

     

  • Michigan

    Prostate Cancer Coalition of Michigan

    Jim Naddeo
    Phone: 810-610-8901
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

     

  • Minnesota

    Minnesota Prostate Cancer Coalition

    Dave Hulbert, Vice President
    Phone: 763-424-0377
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

     

  • Missouri

    Missouri Prostate Cancer Alliance

    LaTanya Patton, Exec. Director
    Phone: 816-872-5769
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it. 

     

  • Nebraska

    Nebraska Prostate Cancer Alliance

    Harold Pharoah, President
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it. 

     

  • Nevada

    Nevada Prostate Cancer Task Force

    Tony Crispino
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it. 

     

  • New Hampshire

    New Hampshire Prostate Cancer Coalition

    Crissy Kantor
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it. 

     

  • New Jersey

    Prostate Cancer Coalition of New Jersey

    Gabe Rosko, President
    Phone: 908-832-2827
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it. 

     

  • New Mexico

    Prostate Cancer Support Association of New Mexico

    Jan Marfyak, Board Secretary
    Phone: 505-254-7784
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it. 

     

  • New York

    New York State Prostate Cancer Coalition

    Darryl Mitteldorf, LCSW, Chairperson
    Phone: 212-673-4920
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it. 

     

  • North Carolina

    Prostate Cancer Coalition of North Carolina

    Mary Anderson, Executive Director
    Phone: 919-703-5345
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it. 

     

  • Ohio

    Central Ohio Men Against Prostate Cancer

    Michael Hughes, President
    Phone: 740-657-1954
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it. 

     

  • Oregon

    Kim Samson
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it. 

     

  • Pennsylvania

    Jerry Bortman
    Phone: 412-596-8163
    E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it. 

     

  • Rhode Island

    Under Development

    Contact: Michael Williams
    E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

     

  • South Carolina

    South Carolina Prostate Cancer Work Group

    Johnny Payne, Co-Chair
    Phone: 864-616-0923
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it. 

     

  • Tennessee

    Prostate Cancer Coalition of Tennessee

    Ira Baxter, Executive Director
    Phone: 615-330-9684
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it. 

  • Texas

    Robin Leach, Ph.D
    E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it. 

  • Utah

    Steven Richardson
    E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it. 

     

  • Virginia

    Virginia Prostate Cancer Coalition

    Alvin Chin
    Phone: 703-957-8852
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it. 

  • Washington

    Washington State Prostate Cancer Coalition

    Paul Sanders, Chairman
    Phone: 425-753-0179
    Fax: 800-808-4749
    E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it. 

  • West Virginia

    Prostate Cancer Coalition of West Virginia

    Dr. Paul F. Kradel, Director
    Phone: 304-267-2520
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it. 

  • Wisconsin

    Michele Radke
    E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it. 

  • Wyoming

    Wyoming Comprehensive Cancer Control

    Robert Johnson, Co-Chair
    Phone: 307-631-6595
    E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it. 

 

 rev: 10/16/2024

 


Members of the NASPCC Board of Directors.

 

Officers

  • President: Merel Nissenberg
  • Vice President: LaTanya Patton
  • Secretary: Jan Marfyak
  • Treasurer: Anthony Minter

Executive Committee

  • President: Merel Nissenberg
  • Vice President: LaTanya Patton
  • Secretary: Jan Marfyak
  • Treasurer: Anthony Minter
  • Director At Large: Donald Lynam
  • Special Advisor: Tom Kirk

Board of Directors

  • Director At Large: Donald Lynam
  • Special Advisor: Thomas Kirk
  • Board Member: Elizabeth Bridges
  • Board Member: Chris Collier
  • Board Member: Paul Kradel
  • Board Member: Eivind Oland
  • Board Member: Harold Pharoah
  • Board Member: David Sauls
  • Board Member: Renee Savickas
  • Board Member: Victor Taylor
  • Board Member: Dwight Thomas
  • Board Member: Bruce Williams
  • Board Member: Darrell Wilson

Members of the NASPCC Executive Board

Meetings

Quarterly Board Meeting Calls
January, April and July
3rd Tuesday of the Month
1:00 p.m. to 2:30 p.m. Eastern Time

Note: October Board Meeting will be held in person the day before our Annual Meeting.

Monthly Executive Committee Calls
1st Tuesday of every Month
5:00 p.m. Eastern Time

Advisory Board

Leonard Gomella, M.D.
Kimmel Cancer Center Network
Jefferson University Hospitals
Philadelphia, Pennsylvania

Vincent Laudone, M.D.
Memorial Sloan-Kettering Cancer Center

Christopher J. Logothetis, M.D.
M. D. Anderson Cancer Center

Judd Moul, M.D.
Duke University Medical Center

William G. Nelson, M.D., Ph.D.
Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins

Alan W. Partin, M.D., Ph.D.
James Buchanan Brady Urological Institute at Johns Hopkins

Kenneth J. Pienta, M.D.
James Buchanan Brady Urological Institute at Johns Hopkins

Saul Priceman, PhD.
City of Hope Medical Center

Mack Roach III, M.D.
University of California San Francisco Comprehensive Cancer Center

Ashley Ross, M.D., Ph.D.
Texas Urology Specialists
Dallas, Texas

Peter T. Scardino, M.D.
Memorial Sloan-Kettering Cancer Center

Paul F. Schellhammer, M.D.
The Virginia Prostate Center
Eastern Virginia Medical School

Ian M. Thompson, M.D.
University of Texas Health Science Center at San Antonio

 

rev: 10/13/2023

 

NASPCC - National Alliance of State Prostate Cancer CoalitionsNASPCC is a nation-wide organization comprised of state PCa coalitions dedicated to saving men’s lives and enhancing the quality of life of prostate cancer patients and their families, through awareness and education and the development of a public policy network.

Goals and Objectives

Goals

  1. To be a resource to foster, encourage and promote the development of state prostate cancer coalitions;
  2. To be a collective voice for state prostate cancer coalitions on a national basis;
  3. To be a resource for the state prostate cancer organizations and a clearinghouse of ongoing best practices; and
  4. To support and encourage state prostate cancer organizations in their efforts involving prostate cancer awareness, education, treatment and clinical trials.

Objectives

  1. To continue to establish the Alliance as the recognized national network for state prostate cancer organizations;
  2. To increase the national awareness of prostate cancer;
  3. To support states in their efforts to reduce health disparities and improve access to care in high risk, medically underserved communities;
  4. To encourage state organizations to mobilize patients and those interested in prostate cancer; and
  5. To collaborate with other organizations and stakeholders interested in prostate cancer.